Endometriosis affects approximately 10 percent of women of reproductive age globally, according to the World Health Organisation (WHO).

In Kenya, estimates suggest that over 1 million women suffer from endometriosis, yet it remains widely underdiagnosed and misunderstood. 

Many Kenyan women endure years of misdiagnosis, often being dismissed or prescribed treatments that fail to address the root of the problem.

This prolonged lack of proper diagnosis not only exacerbates physical pain, but also takes a heavy toll on their emotional and mental well-being.

Ms Edith Oluoch is among the many women misdiagnosed with this disease. 

She narrates her journey through ineffective pain management and treatments.

"In 2019, after a decade of misdiagnosis, I was diagnosed with severe endometriosis, specifically ovarian endometrioma. As if that was not enough, in May 2022, I was also diagnosed with adenomyosis. My doctors advised me to consider a hysterectomy, a decision I am still contemplating while I continue to manage both conditions," narrates Ms Oluoch.

"The physical toll of these diseases is brutal, but the emotional and mental strain is even more profound. For years, I have struggled with depression, questioned my faith, and battled an overwhelming sense of hopelessness. However, through counseling and the support of loved ones, I have found the grace to persevere," she tells AVDelta News.

Symptoms of this debilitating disease include cramps that begin before and extend after a menstrual period, lower back or abdominal pain, pain with intercourse, pain with bowel movements or urination, and infertility.

Individuals with endometriosis may experience fatigue, constipation, bloating, or nausea, especially during periods.

"My experience with these reproductive health conditions has inspired me to advocate for sexual and reproductive health and rights (SRHR). I have become a voice for women like me who are battling reproductive diseases, and for those who may not have the privilege of a diagnosis," she narrates.

Due to her endometriosis diagnosis, Ms Oluoch decided to start a company by the name Artistic Bliss, which has been working with various organisations in advocacy and community services.

"I founded Artistic Bliss in 2019 after years of advocacy. It is an outlet for my passion for art and a platform for driving meaningful change. As a woman navigating life with endometriosis and adenomyosis, I have become acutely aware of the vulnerabilities that come with gender bias and societal expectations. Women are often prey to cultural and social norms that disregard our bodily autonomy and health. Through organisations like Artistic Bliss, I am able to challenge those norms, advocate for SRHR, and create a safe space for open discussion and creativity," she added.

Adenomyosis, much like endometriosis, is a painful condition that affects women, particularly during their reproductive years.

It occurs when the tissue that normally lines the uterus (the endometrium) begins to grow into the muscular wall of the uterus (the myometrium). 

This can cause the uterus to enlarge and lead to heavy or prolonged menstrual bleeding and severe cramping.

While the exact cause of adenomyosis is not fully understood, hormonal changes may play a role.

Some symptoms of adenomyosis include severe menstrual cramps, pelvic pain, an enlarged uterus, and pain during intercourse.

The WHO has recognized the need for greater awareness, earlier diagnosis, and improved access to treatment for endometriosis worldwide.

"Endometriosis and adenomyosis have changed my life, but they have also fueled my passion for art and advocacy. I want Artistic Bliss to be a reflection of resilience and a testament to the power of turning personal pain into collective growth. My journey is far from over, but through my company and advocacy, I am determined to leave a lasting impact," said Ms Oluoch.

The condition is more than just painful periods. It is a chronic disease that can have a devastating impact on a woman's fertility, mental health, and quality of life.

In Kenya, where health care systems are often under-resourced, women from marginalised communities face even greater barriers in accessing adequate care and treatment.